Monday, July 27, 2009

Stellan

Prayers for Stellan
 

Updates are via MckMama's tweets and blog.  You can click on her blog here:  My Charming Kids to read her exact words.  If you haven't checked her out, I suggest you do!


UPDATE:  They are going home!  The new drug cocktail is working and MckMama and Stellan are heading home.  The hope is to that the meds will continue to work until Stellan is big enough/weighs enough to safely have the necessary surgery to repair his heart condition. (Aug. 2)

UPDATE:  Stellan is making huge improvements and being weaned off IV meds and put onto oral meds to control his SVT.  If all goes well, they will delay his trip to Boston for an ablation.  Putting that off as long as possible gives him a much better chance for a successful surgery.

UPDATE:  Everything is arranged for the transfer to Boston, EXCEPT having a bed available in the CICU (Cardiac Intensive Care Unit).  Once a bed opens, Stellan and his parents will be on a flight to Boston. (2:00PM July 29)

UPDATE:  This is via MckMama's tweet this morning:  Stellan had a good night. Zofran kicked in & he stopped vomiting. Sinus rhythm all night! He's still VERY swollen: sign of his heart failure.  They are still waiting for details to go to Boston. (July 29, 10:00AM)

UPDATE:  Stellan is out of immediate danger.  Plans for Boston are still being made. (10:15 AM, July 28)

UPDATE:  Stellan had an hour and a half of no SVT and his little body did some recovering before going back into SVT.  Hopefully, that break, and the rest it brought him, will get him through the night.  He has not been transferred to Boston yet. (posted 1:00AM EST).

UPDATE:  Stellan will be air ambulanced to the children's hospital in Boston.  He is not in "moment to moment crisis," but in serious condition and stable.  Last I checked, logisitics were being worked out for the air care flight.

UPDATE:  Stellan is detiorating.  Things seem to be going downhill fast.  You can follow Jennifer's (MckMama) blog at My Charming Kids.

Stellan is not doing well.  Do whatever you do when a little one is in need - prayers, thoughts, good vibes, healing energy - whatever, just do it.

Read my Tweets, to the right, for updates.

10 comments:

  1. Sending prayers, angels and love.

    ReplyDelete
  2. Awwwwwwwwwwww. I pray for him every single night and think about him often. Sending angel love and powerful positive thoughts his way too.

    Thank you for the update

    ReplyDelete
  3. prayers are lifted for this precious little one.
    ~AM

    ReplyDelete
  4. I am praying for little Stellan.

    ReplyDelete
  5. My heart just falls every time I read he's not doing well.

    Continuous prayers.

    ReplyDelete
  6. Awwww! Keeping him in my thoughts and prayers.

    ReplyDelete
  7. I am keeping lil Stellan and his family in my thoughts and prayers...it is so sad...my heart aches for his parents...as i just could not imagine...

    ReplyDelete
  8. We pray for him - and his family - daily. It's time for some healing.

    ReplyDelete
  9. I've been gone all day, came straight here to hopefully find better news. Sadly disappointed...

    ReplyDelete
  10. continuing with prayers we had friends light a candle at church

    ReplyDelete